Home Page

Awareness Building

Amyloidosis Info

TTR & Familial

Important Clinical Trials

Upcoming Events

About Us

Contact Us

Resources

Treatment Centers

Awareness Items

AMY Blogs

Patient's Day

Survivor Stories

In Memoriam

Donations




Anti-Body Trials Go After
the Amyloid Deposits on Organs

Prothena’s NEOD001
&
Columbia’s 11-1F4




Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.com


Amyloidosis Information


  • Amyloidosis Awareness: Illustrated Booklet for Patients & Physicians.
    Available for online distribution:
    [English] [Spanish] [Portuguese] [French] [Italian] [German] [Dutch] [Japanese]


  • Getting A diagnosis (BU) and diagnosis from Mayo
  • Amyloidosis Center Boston University
  • What is amyloidosis
  • AMYLOIDOSIS DEFINITION-MAYO
  • What are the types
  • What are the symptoms
  • What are FREE LIGHT CHAINS
  • SYMPTOMS – MAYO
  • Definition
  • Resources
  • Patient and Care Giver Resources
  • Face to Face Support Groups
  • On Line Support
  • On Line Support – Hereditary amyloidosis
  • SMM-WHAT IS SMOLDERING MYELOMA - Video below from Martha Lacy MD, Mayo/Rochester
    Chair for the division of hematology(amyloid seen in this division)
  • HEALTHY NERVES- JANICE WIESMAN MD- NEUROLOGIST (DOC File)
  • NERVES AND NEUROPATHY - Dr. Janice Wiesman’s Presentation


    CARDIAC AMYLOIDOSIS (THREE VIDEOS)

    Part 1:

    Part 2:

    Part 3:

    Mayo YouTube Overview about Amyloidosis


    Podcasts

    Amyloid Diagnosis – In this podcast Dr. David Seldin discusses how doctors diagnose amyloidosis (e.g., common signs and symptoms, organ involvement, and diagnostic testing.)

    Amyloid Types – In this podcast Dr. David Seldin discusses the four major types of amyloidosis.

    Amyloid Treatments – In this podcast Dr. David Seldin discusses treatment options for patients with amyloidosis.

    Amyloid Research – In this podcast Dr. David Seldin discusses laboratory and clinical research programs at The Amyloidosis Center.

    Amyloid Neuropathy – The Basics – In part one of a two-part series, Dr. Janice Wiesman discusses the causes, common symptoms, examination findings, and tests that diagnose amyloid neuropathy.

    Amyloid Neuropathy – Treatment – In part two of a two-part series, Dr. Janice Wiesman provides an overview of current and future treatments for amyloid neuropathy.

    Rare Disease Feature (WAER 88.3 FM) – This radio segment aired on WAER 88.3 FM (Syracuse, New York) on the NPR show “All Things Considered” on February 29 and March 1, 2012. The segment features two patients diagnosed with systemic amyloidosis – who share their story from diagnosis to treatment and recovery – and includes an interview with Dr. David Seldin.


  • Preparing for Your Appointment

  • Treatment Options (BU) and Treatment page from Mayo

  • Stem Cell Transplant

  • Video – How A Stem Cell Transplant Works


  • Support Groups

    FULL 2016 CALENDAR

    **TTR & Familial**

    Arizona/Southwest
    (Phoenix)


    Carolinas (Charlotte/Duke)

    Florida (Jacksonville)

    Florida (Miami)

    Florida (Tampa)

    Georgia/Alabama

    Indianapolis/Chicago

    Kansas City

    Louisiana

    Maryland (Baltimore/D.C.)

    Maryland (Hagerstown)

    Massachusetts (Boston)

    Michigan/Ohio

    Minnesota/Upper Midwest

    Nevada (Las Vegas)

    New York City

    New York (Rochester)

    Ohio/PA

    Portland/Seattle

    Philadelphia

    Rocky Mountains (Denver)

    Southern California (L.A.)

    Texas (Dallas)

    Texas (Houston)

    Utah