Home Page

Awareness Building

Amyloidosis Info

TTR & Familial

Important Clinical Trials

Upcoming Events

About Us

Contact Us

Resources

Treatment Centers

Awareness Items

AMY Blogs

Patient's Day

Survivor Stories

In Memoriam

Donations






Were you diagnosed with Cerebral Amyloid Angiopathy (CAA)?
Click Here





Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


Low Cost Medicines

Finding Low-Cost or Free Medicine

Because so many low-income patients cannot afford the medicines they need, patient assistance programs have been developed. Most doctors are either unaware or under-informed about these programs. If the patient cannot qualify for state or federal insurance (Medicaid, military or veteran coverage, etc) many communities and states have developed assistance programs. For a list of state programs, go to www.rxassist.org/pdfs/state_programs.pdf.

If the patient is unable to find coverage through one of these programs, the pharmaceutical companies have developed various patient assistance programs. Probably the easiest way to determine whether a medicine might be covered is to go to one of four websites. These are https://www.pparx.org/Intro.php, www.needymeds.com/, www.helpingpatients.org and www.rxassist.org/. These sites allow you to click on a drug list. Once a specific medicine is chosen, available assistance programs along with relevant qualifying criteria are brought up. Most of these are for brand name medicines. www.rxoutreach.com/en/tn/tn1.aspx which is part of Rxassist helps provide generic medicines.

Once you find a program that offers the medicine your patient needs, both you (or your staff) and the patient will be required to fill out some paperwork. Some programs will require the patient to provide financial information such as a W-2 form or a tax return. With a little work on your part, you could make a huge difference for your patient.

A helpful article which explains the patient assistant programs in more detail is available at http://www.needymeds.com/indices/article.shtml.

Support Groups

2019 CALENDAR


ATTR Hereditary and Wild Type

Non-ATTR Hereditary


Arizona (Phoenix)

California (Los Angeles)

California (San Diego)

Carolinas

Chicago

Colorado (Denver)

Detroit

Florida (Jacksonville)

Florida (Miami)

Florida (Tampa)

Georgia/Alabama

Indianapolis

Kansas City

Louisiana

Maryland (Baltimore/D.C.)

Maryland (Hagerstown)

Massachusetts (Boston)

Minnesota

Nevada (Las Vegas)

New York City

New York (Rochester)

Ohio (OSU)

Philadelphia

Portland

St. Louis

Texas (Dallas)

Texas (Houston)

Utah

Virginia

Washington (Seattle)

Washington (Spokane)


We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.



Order ASG Shirts Here (PDF Form)