"Some day this disease will be considered a treatable nuisance"
-- Dr. Vescio from Cedars Sinai

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Support Group Tips

Florida - Jacksonville (see MIAMI AND TAMPA TOO)

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back). The non toll free number is 630-350-7539.

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person: Muriel muriel@amyloidosissupport.com
Tel: 847-350-7540
866-404-7539 (Toll-Free)
Paula Schmitt Pschmitt_98@yahoo.com

Alternative contact is:
Kathy Wilson kalawil@cfl.rr.com

Date: Saturday May 17, 2014
Time: 9am to 3pm (flexible)
Location:

The meeting will be held in Room 153 of the Stabile North Building. You get to that building by coming down William Davis Parkway to Mellish Drive. Left on Mellish and Stabile North is a 6-floor building. There is parking all around it. Click here for map of Campus.Click here for map of Campus.

Comments: GUEST: Dr. Francis Buadi Mayo/Rochester
Notes on previous meetings: November 16TH Saturday our guest was Dr. Vivek Roy Mayo/Jacksonville


SAT MAY 4, 2013 our guest was Taimur Sher MD


March 31, 2012 our guest was Dr. Taimur Sher from Mayo/Jax.


September 17, 2011 our guest was Dr. Francis Buadi – Mayo/Rochester - Many new people and renewed friendships with others while Dr Buadi very thoroughly and thoughtfully responded to questions from each individual's amyloidosis experience. It is amazing how much we have advanced in the understanding of amyloidosis just since the last meeting here only six months ago. We ran the gamut from newbies to long term survivors, SCT or chemo only survivors and their caregivers and nurses who wanted to learn more. We wish everyone who was diagnosed with this disease in whatever form it takes could attend one of these support group meetings.


November 6 , 2010 What a great meeting we had today in Jacksonville. There were familial faces and some new ones too. We had patients there with AL, AL & MM, and 2 with localized forms of the disease. Delilah and her dad were both delightful and I am so glad to have been able to meet them. It always special when you get to meet someone face to face after talking to them here on the list. Her mom continues to do well following her recent SCT at Mayo. Kathy Wilson brought a special treat today that everyone got to try. There is a business in her hometown that is well known for its chocolate covered potato chips!!! Oh my, they were yummy!


GUESTS MARCH 6, 2010 - DR. JONATHAN KAUFMAN – EMORY AND DR. VIVEK ROY MAYO/JAX. WERE WONDERFUL


Our Guest in Oct. 09, Dr. Candido Rivera was informative, Supportive and educational.


Our Guests 1/31/09 were Dr. Vivek Roy and LLS rep Lynette Mills


May 17. 2008 - Our guest was Dr. Candido Rivera
http://www.mayoclinic.org/bio/10861505.html
http://mayoresearch.mayo.edu/mayo/research/staff/rivera_ce.cfm


1/12/08

The Jacksonville meeting went very well…Dr. Roy of Mayo/Jacksonville was informative and helpful and the Leukemia Lymphoma Rep (Lynette) made us aware of our $500.00 stipend and other entitlements from the LLS. They are on our website under patient and caregiver resources or you can go direct to www.lls.org. In Florida, even if you lost a love one you can collect on receipts if they were incurred during the fiscal year. Each state and district seems to have the ability to push the envelope in a different way.


7/28/07

Guest Dr. Vivek Roy and Dr. Rudi Hrncic from the Binding Site
Publications - Vivek Roy, M.D.
Research Bio:http://mayoresearch.mayo.edu/mayo/research/staff/roy_v.cfm
Postgrad on Line Article: http://postgradmed.com/issues/2006/06/093/


1/20/07 - Our guests were Dr. Vivek Roy and Ms. Deborah Slappey Pitts. They contributed to what was said was our best Florida meeting yet. We hope to be back in Jacksonville in the fall.
http://www.deborahslappeypitts.com/
Publications - Vivek Roy, M.D.
Research Bio: http://mayoresearch.mayo.edu/mayo/research/staff/roy_v.cfm
Postgrad on Line Article: http://postgradmed.com/issues/2006/06/093/



Amyloidosis Support Groups
AmyloidosisSupport.org
1-866-404-7539 TOLL FREE USA