October 1, 2016 our guests were Dr. Jeffrey Zonder- Oncologist- Karmanos Cancer Institute
Dr. Dan Judge- Cardiologist - Johns Hopkins Hospital
Dr. John Sperati – Nephrologist - Johns Hopkins Hospital
Lori Apple - Manager, Patient Advocacy and Engagement - Alnylam Pharmaceuticals
We met at the MAIN HOSPITAL
Johns Hopkins Hospital
1800 Orleans Street
in the Chevy Chase Auditorium.
April 9, 2016 Saturday in Silver Spring, our guest Dr. Vaishali Sanchorawala Boston University Amyloid Clinic
October 2015 guests: Dr. Janice Wiesman- Amyloidologist specializing in Neuropathy– BUMC
Dr. Dan Judge - Cardiologist; and Angie Klees, RD - Nutritionist
Our April 2015 guest was Dr. Vaishali Sanchorawala – BUMC
September 2014 guest was Dr. Vaishali Sanchorawala – BUMC
September 7, 2013 our guest was Francis Buadi MD from the MayoRochester
Saturday MARCH 9, 2013 OUR GUEST WAS John Berk MD –AL, ATTR, AA, LOCALIZED
SAT SEPT 15 2012 Our guest was Dr. Vaishali Sanchorawala – BUMC
Our guest February 25, 2012 Our guest November 5th, 2011 was Dr. Francis Buadi Mayo/Rochester
Our guest November 5th, 2011 was Dr. Nishant Tagej of the NIH. Over 20 were educated supported and happy to be there.
Our November 13, 2010 guest was Dr. Benjamin Philosophe, Director of Liver Transplantation, University of Maryland
Our March 13, 2010 guest was - Dr. Jonathan Kaufman- Emory
Our August 15th guest was - Dr. Joseph Mikhael from Mayo Phoenix his knowledge and kindness was much appreciated.
Our May guest was - Dr. Jeffrey Zonder – Karmanos/Detroit and his knowledge and kindness was much appreciated.
Our March Guest –Muriel Finkel, President Amyloidosis Support Groups Inc. www.amyloidosissupport.com was informative and interesting and fun.....
Our Guest Dr. Francis Buadi – Mayo Rochester MN fielded all questions and enlightened all attendees. There were at lot of questions on swelling and Dr. Buadi provided detailed explanation of the fluid in the blood and fluid in the cells. It was very interesting.
Pat Gibson shared that she will attend the International Symposium on Familial Amyloidosis in London next month. She said it was modeled after the Woods hole event with a Patients day. She successfully lobbied to have 30 non-medical types to have access to all sessions. She said she would share her experience at the conference at the next meeting.
Guest speaker for August 11 was Dr. Angela Dispenzieri – Mayo/Rochester
Guest speaker for May 12 WAS , Dr. Shaji Kumar - Mayo