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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.com


New York

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back).

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person: Muriel info@amyloidosissupport.com
Date: March 18, 2017 Saturday
Time: 8:30 am to 2:30pm (flexible - closing time light breakfast and lunch served)
Location: Sloan Kettering – See Below
Comments: Guests: Doctors Angela Dispenzieri, Heather Landau and Hani Hassoun
Notes on previous meetings: October 15, 2016 our guests were Drs. Jeff Zonder, Suzanne Lentzsch, and Mat Maurer


Guests on June 18th, 2016 were Dr. Mark Sloan from the Amyloidosis Clinic at Boston University Medical Center along with Suzanne Lentzsch and Thomas Brannagan from Columbia plus Drs. Heather Landau and Hani Hassoun from Sloan and other local doctors.


Guests in March 2016 included Drs. Suzanne Lentzsch from Columbia and Janice Weisman (neurologist from BU) joining Taxiarchis Kourelis (TAX) from Mayo Clinic and other local doctors.


Sloan meetings: Rockefeller Research Lab(across from Memorial Sloan Kettering)
430 E. 67th St., New York, NY, 10065
RRL 116 – Across from entrance where you come in..follow signs..

Columbia meetings: Irving Cancer Research Center
1130 St Nicholas Avenue1rst Floor Auditorium New York, NY 10032
Parking was provided free of charge @ Irving Cancer Research Center parking garage 1130 St. Nicholas Avenue between St. Nicholas and Audubon Avenues at 167th Street


Saturday June 6, 2015 our guest was Dr. Angela Dispenzieri – Mayo /Rochester along with local doctors Landau, Hassoun and Brannagan. The meeting was held at Rockefeller Research Lab(across from Memorial Sloan Kettering)


On Saturday March 7, we had a great meeting for anyone with kidney or cardiac involvement, neuropathy, and all types of amyloidosis. Our guests were : Dr. Lauren Stern from Boston University, Janice Wiesman from BU, and Dr. Suzanne Lentzsch from Columbia along with our Prothena Rep (NEOD001). Veteran amyloidosis researcher and clinician Dr. Peter Gorevic popped in to say hello too.

that meeting was at Mt. Sinai
Mt. Sinai
1470 Madison Avenue.
Btw 101/102nd street.
CSM Building; CSM Building;
HESS Seminar Room A


Saturday October 25th our guests were Dr. Shaji Kumar Mayo/Rochester -and Janice Wiesman MD– Neurologist –BU along with Drs. Suzanne Lentzsch and Drs. Thomas Brannagan and Mat Maurer from Columbia.


Saturday June 21st 2014 our guests were Drs. Angela Dispenzieri from Mayo/Rochester, Heather Landau from MSKCC, Suzanne Lentzsch from Columbia, Janice Wiesman from Boston Medical and David Vesole from Hackensack.


February 22, 2014 Saturday GUESTS included : Martha Skinner MD- - - BUMC Emeritus, Doctors from Sloan, Columbia and Mt.Sinai and other local hospitals


Our guest October 5th was Dr. Joseph Mikhael of Mayo/Phoenix along with Dr. Heather Landau and Dr.Hani Hassoun, from MSKCC and Dr. Suzanne Lentzsch, Columbia as well as our Binding Site Rep Richard O’Hara and our LLS rep too.


Our guests June 1, 2013 were Dr. Wiesman, BU,Dr.Osman, Mt. Sinai, Dr. Hassoun, MSKCC, Dr. Lentzsch, Dr. Brannagan Columbia


February 23, 2013 our guests wer Dr. Angela Dispenzieri Mayo/Rochester and Drs. Landau, Hassoun fom Sloan and Osman from Mt. Sinai


SAT SEPT 22 – 2012 GUESTS were Dr. Vivek Roy Mayo/Jacksonville, Drs. Landau and Hassoun from MSKCC and Dr. Vesolel from Hackensac


SAT. JUNE 9 -2012 our guests were Dr. Jeff Zonder – Karmanos/Detroit and Dr. Keren Osman – Mt. Sinai. Over 40 were supported, educated, empowered and had a wonderful time.


SAT FEB.25- 2012 our guests were Dr. Angela Dispenzieri- Mayo/Rochester and Dr. David Vesole of Hackensack.


SAT September 24, 2011 our guest was Dr. Joseph Mikhael of Mayo Clinic /Phx along with Dr. David Vesole of Hackensack.


Our Guest Saturday June 11, 2011 was David Seldin MD, PhD, BUMC


Our Guest February 26, 2011 was Dr. Angela Dispenzieri from Mayo/Rochester- it was our best ever meeting of close to 40 wonderful patients and care givers


Our Guest on Sept 25th, was Dr. Joseph Mikhael –Mayo/Phoenix and Dr. Lerner, transplant surgeon from Mt. Sinai – it was our best meeting yet


Our guest - June 5, 2010 Dr. Angela Dispenzieri/ Mayo – Rochester and updates from symposium in Rome.....


February 20, 2010 we had Dr. David Vesole – Hackensack and Dr. Robert Kyle – Mayo/Rochester as our special guests and they out did themselves...


Our Fall 009 Guest Dr. Joseph Mikhael – Mayo/Phoenix was wonderful and full of energy.


Our June 6 Guest – Dr. Angela Dispenzieri – Mayo/Rochester was enjoyed and appreciated by all..


Our Guest on Feb.22, 2009 was Dr. Peter Gorevic and other specialists in amyloidosis including a neurologist and a hematologist.
http://www.bu.edu/amyloid/events/x-symposium.html
Interview with CNN


Saturday October 18, 2008 our guest wasDr. Jeffrey Zonder
http://www.clinicaltrials.gov/ct2/show/NCT00520767?term=amyloidosis+zonder&rank=1


Our June 2008 guest was Dr. Angela Dispenzieri from Mayo/Rochester.
http://mayoresearch.mayo.edu/mayo/research/staff/dispenzieri_a.cfm



Our Guest – Dr. John Berk from Boston University Medical Center was brilliant, down to earth and so caring and kind….we hope he returns to the Big Apple Soon…

http://www.bu.edu/amyloid/doctors/index.html

http://www.bu.edu/amyloid/doctors/trials/index.html

Dr. Angela Dispenzieri – Mayo/Rochester was wonderful and we had Dr. Jonathan Bromberg the Transplant Coordinator of Mt.Sinai drop by along with Dr. Del Rio.


We thank Dr. Comenzo so much for your kindness, generosity and time that he so willingly gave to us at our New York Support Meeting Today…….We learned a lot and gained much support from his wonderful spirit. We had 49 people (cousin Kenny counted:=) and all were so grateful.



Support Groups

FULL 2017 CALENDAR

**TTR & Familial**

AZ/Southwest (Phoenix)

Carolinas (Charlotte/Durham)

Florida (Jacksonville)

Florida (Miami)

Florida (Tampa)

Georgia/Alabama

Indianapolis/Chicago

Kansas City

Louisiana

Maryland (Baltimore/D.C.)

Maryland (Hagerstown)

Massachusetts (Boston)

Michigan/Ohio

Minnesota/Upper Midwest

Nevada (Las Vegas)

New York City

New York (Rochester)

Ohio/PA

Portland/Seattle

Philadelphia

Rocky Mountains (Denver)

Southern California (L.A.)

Texas (Dallas)

Texas (Houston)

Utah


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