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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.com


Philadelphia

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back). The non toll free number is 630-350-7539.

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person: Elinda Lado elinda@amyloidosissupport.org

Alternative contact is:
Muriel MURIEL@AMYLOIDOSISSUPPORT.COM

Date: November 5, 2016
Time: 9:30 AM, -2:30 PM
Location: University of Pennsylvania
IMPORTANT: Parking will be at PERLEMAN GARAGE (ENTRANCE LOCATED BEHIND THE PERLEMAN BUILDING), BRING TICKET FOR VALIDATION. PENN TOWER GARAGE IS CLOSED DUE TO CONSTRUCTION

PERLEMAN
TRC LOBBY( located on the first floor) of the Perleman Center
3400 Civic Center Blvd
Follow Signage-Complimentary Food Served

Comments: GUEST: Jeff Zonder MD – Karmanos /Detroit
Notes on previous meetings: April 16, 2016 Saturday our guest was Dr. Francis Buadi, , Mayo Clinic


Saturday November 7, 2015 our guest was Martha Grogan Mayo Clinic March 28, 2015 our guest was Dr Frederick Ruberg BUMC


March 28, 2015 our guest was Dr Frederick Ruberg BUMC


Our guests in November were Prashant Kapoor Mayo/Rochester Publications PLUS, Brian Drachman from UPenn and TTR trials


Saturday April 12 guest was Vaishali Sanchorawala MD-BU http://www.bmc.org/amyloid/team.htm and Amyloidosis Specialists from U Penn


Saturday November 2, 2013 our guests were Nishant Tageja MD from the NIH, Adam Cohen MD and Brendan Weiss MD of U Penn


Saturday April 13, 2013 our guests were Adam Cohen and Brendan Weiss of UPenn


Saturday October 27, 2012 our guests were AMYLOID CARDIOLOGIST: Matthew Maurer MD– Columbia, David Vesole MD, from Hackensack and Dan Vogl MD from U Penn.


Saturday April 14, 2012 our guests were Dr. Adam Cohen – Fox Chase along with Jeffrey Zonder - Karmanos in Detroit


Saturday November 5, 2011 April 9, 2011 Our guest was Our guest was Dr. Martha Lacy of the Mayo Clinic – Rochester MN- support, education and we had it all.


April 9, 2011 Our guest was be Dr. Adam Cohen – Fox Chase


November 6, 2010 our guests were Dr. Philip Greipp – Mayo/Rochester and Dr. David Vesole from Hackensack


OUR GUEST April 10, 2010 was – Dr. David Vesole – Hackensack – our largest group in a long time hung on his every word....


Our last guest was Adam D. Cohen, MD
Associate Member, Medical Oncology
Fox Chase Cancer Center
and Lisa Lucker , social worker-guided imagery


Our guest was Dr. Mikhael – Mayo/Phoenix –how wonderful he was as are all of our guests


Dr. Philip Greipp – Mayo/Rochester was our Special Guest in September 2008


March 2008: Inclement Weather kept our guest Dr. Roy from Mayo in Jacksonville from attending. We did manage to have a great meeting, and do hope to have Dr. Roy back at a future time.


The meeting went very well. Dr. Kumar was wonderful. . We really enjoyed his talk. We had 2 new people and a lot of good questions from the group. Chris W showed us his scar. He looked great. Eileen J is preparing for a trip to Italy with her sister (boy, would I like to go back.) Guest was - Dr. Shaji Kumar – Mayo/Rochester-Bio and Publication List Below
http://mayoresearch.mayo.edu/mayo/research/staff/Kumar_SK.cfm
http://mayoresearch.mayo.edu/mayo/research/staff/publications-listed.cfm?personid=12620637
Our next meeting in Saturday March 8, 2008.

***************************************************

The meeting went very well. We had 2 new couples and 1 new single. One of the couples' daughter was recently diagnosed.

Our speaker, Marcia Melincoff was very good. She spoke about care giving. Her presentation was a little over an hour. We all felt that we wanted more. She should be brought back. The new people all understood that they must get to an amy center, for a second opinion and to hear what the experts in the field have to say about their cases.

***************************************************

I just wanted to thank everyone who came to the Philadelphia support group meeting. We had some wonderful sharing. It was great to meet our newest members, Eileen and Kevin.

We are looking forward to our next meeting on Saturday, September 17th at Blumle Life Sciences building at 10th and Locust Sts. Jefferson Medical School and hospital did an outstanding job for us.

***************************************************

There were 26 very happy people today in Philadelphia. Elinda Lado ran a terrific meeting of patients, care givers, and those who had lost loved ones. We had AA, AL, and Familial of various forms. We had pre transplant, post transplant, and thinking about transplant. The city of brotherly love was indeed filled with it today. Elinda will fill you in later. She is so high, we can't scrape her off the ceiling. She keeps saying, " They liked me, they really liked me.". Her husband and I are pulling her down now so we can go to dinner. Sue Smith, you had better get ready as this group wants to do awareness in a big way.

Love you all, Muriel, 19 Mar 2005

***************************************************

I just wanted to thank everyone who came to the Philadelphia support group meeting. We had some wonderful sharing. It was great to meet our newest

members, Eileen and Kevin. WE are looking forward to our next meeting on Saturday, September 17th at Blumle Life Sciences building at 10th and Locust

Sts. Jefferson Medical School and hospital did an outstanding job for us. Anyone wishing to attend this meeting should contact me at drlado@verizon.net

Elinda Lado, 21st June 2005



Support Groups

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