"Some day this disease will be considered a treatable nuisance"
-- Dr. Vescio from Cedars Sinai

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International Amyloidosis Centers
Center for the Study of Familial Amyloidosis
(Rio de Janeiro, Brazil)
Center for the Study & Cure of Systemic Amyloidosis
(Pavia, Italy)
Germany
(Heidelberg)
Groningen Unit for Amyloidosis Research & Development
(The Netherlands)
National Centre for Amyloidosis
(London, U.K.)
Princess Alexandra Hospital
(Brisbane, Australia)
Spain
(Barcelona)
Westmead Hospital
(Sydney, Australia)
Kumamoto University Hospital
(Kumamoto, Japan)
Princess Margaret Cancer Centre
(Toronto, Canada)


Support Group Tips

MOST COMMON SYMPTOMS OF AMYLOIDOSIS BEFORE TREATMENT
(FROM POLL ON WWW.AMYLOIDOSISONLINE.COM )

  • FATIGUE -93%
  • FOAMY FROTHY URINE -72%
  • SHORTNESS OF BREATH -71%
  • EDEMA (ANKLE AND FEET SWELLING) -70%
  • WEAKNESS -64%
  • TINGLING OR NUMBNESS HANDS OR FEET -56%
  • DIZZINESS UPON STANDING -54%
  • FEEL FULL WITH EATING LITTLE -50%
  • EASY BRUISING -45%
  • ELEVATED CHOLESTEROL -43%
  • SUDDEN LOSS OF WEIGHT -37%
  • DIFFICULTY SWALLOWING -36%
  • CARPAL TUNNEL SYNDROME -35%
  • NONPRODUCTIVE COUGH -35%
  • CHANGES IN NAILS OR HAIR -34%
  • IRREGULAR HEART BEAT -34%
  • DIARRHEA -31%
  • LOWER BACK ACHE -29%
  • CHANGES IN SKIN -28%
  • PURPUREA (BRUISING AROUND EYES) -25%
  • ENLARGED TONGUE(MACROGLOSSIA) -24%
  • GALLBLADDER REMOVED -19%
  • FALLING DUE TO LOW BLOOD PRESSURE -17%
  • ELEVATED ALKALINE PHOS.LEVELS IN BLOOD -11%


    Amyloidosis Support Groups
    AmyloidosisSupport.org
    1-866-404-7539 TOLL FREE USA