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ATTR SURVEY




Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


MOST COMMON SYMPTOMS OF AMYLOIDOSIS BEFORE TREATMENT
(FROM POLL ON WWW.AMYLOIDOSISONLINE.COM )

  • FATIGUE -93%
  • FOAMY FROTHY URINE -72%
  • SHORTNESS OF BREATH -71%
  • EDEMA (ANKLE AND FEET SWELLING) -70%
  • WEAKNESS -64%
  • TINGLING OR NUMBNESS HANDS OR FEET -56%
  • DIZZINESS UPON STANDING -54%
  • FEEL FULL WITH EATING LITTLE -50%
  • EASY BRUISING -45%
  • ELEVATED CHOLESTEROL -43%
  • SUDDEN LOSS OF WEIGHT -37%
  • DIFFICULTY SWALLOWING -36%
  • CARPAL TUNNEL SYNDROME -35%
  • NONPRODUCTIVE COUGH -35%
  • CHANGES IN NAILS OR HAIR -34%
  • IRREGULAR HEART BEAT -34%
  • DIARRHEA -31%
  • LOWER BACK ACHE -29%
  • CHANGES IN SKIN -28%
  • PURPUREA (BRUISING AROUND EYES) -25%
  • ENLARGED TONGUE(MACROGLOSSIA) -24%
  • GALLBLADDER REMOVED -19%
  • FALLING DUE TO LOW BLOOD PRESSURE -17%
  • ELEVATED ALKALINE PHOS.LEVELS IN BLOOD -11%

  • Support Groups

    2018 CALENDAR

    **TTR & Familial**

    AZ/Southwest (Phoenix)

    Carolinas (Charlotte/Durham)

    Chicago

    Florida (Jacksonville)

    Florida (Miami)

    Florida (Tampa)

    Georgia/Alabama

    Indianapolis

    Kansas City

    Louisiana

    Maryland (Baltimore/D.C.)

    Maryland (Hagerstown)

    Massachusetts (Boston)

    Michigan/Ohio

    Minnesota/Upper Midwest

    Nevada (Las Vegas)

    New York City

    New York (Rochester)

    Ohio/PA

    Portland/Seattle

    Philadelphia

    Rocky Mountains (Denver)

    San Diego

    Southern California (L.A.)

    St. Louis

    Texas (Dallas)

    Texas (Houston)

    Utah


    We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.



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