I am regretfully writing this message to let you know that Jim Lang, my
father, passed away early this past Monday morning.
DATE DIAGNOSED: July, 1988
TYPE OF AMYLOIDOSIS: Primary (AL)
WHERE TREATED: Mayo Clinic (as outpatient)
COMMENTS: As of May 16, 2006, I am a 19 (+) year survivor and have experienced two separate medicine regimens, oral Melphelan & Prednisone (Aug, 1988 - June, 1991) and oral Dexamethasone (Decadron) (May, 2001 - Oct, 2005). My most recent (17th) re-evaluation at Mayo Clinic Rochester, MN., indicated no current amyloid production (FLC Assay) and a heart wall thickness reduction of 25% since previous test done in Oct., 2003. Doctor's conclusion was that I am "stable" and we agreed to a "wait and see" attitude regarding any further treatment. We are willing to share with anyone who needs help in learning to "live with this disease."
Jim & Carolyn Lang
Jim has now started dialysis.
- Muriel 4/1/07