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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


Amyloidosis Patient Registry

Helpful Hints for Registry

1. When signing up for the registry, please use a desktop or laptop computer with Chrome, Firefox or Safari as your browser. At this time, the operating platform for the registry is not set up to be accessed by a cell phone or some tablets and you may encounter problems if you are using this type of device.

2. Make sure your browser is up to date.

3. If you are unable to receive text messages, then you need to register using the Challenge Questions option as a means of verifying your identity. (Ex: What city did you meet your spouse in? What school did you attend in fourth grade?)

4. If you do not have access to a computer, try your local library or we can arrange a phone call with the Registry Manager who can enter the information on your behalf.

5. If you experience any issues or require further assistance, please contact the Registry Manager at registry@amyloidosissupport.org. If we are unable to resolve your issue, we will escalate your request to the technical support staff at Peer Platform.

Thank You!

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Support Groups

2020 CALENDAR

Arizona (Phoenix)

California (Los Angeles)

California (San Diego)

Chicago

Colorado

Detroit

Florida (Jacksonville)

Florida (Miami)

Florida (Tampa)

Georgia/Alabama

Indianapolis

Kansas City

Louisiana

Maryland (Baltimore/D.C.)

Maryland (Hagerstown)

Massachusetts

Minnesota

Nevada

New York City

New York (Rochester)

North Carolina

OSU/Cleveland Clinic

Philadelphia

Portland

St. Louis

South Carolina

Texas (Dallas)

Texas (Houston)

Utah

Virginia

Washington (Seattle)

Washington (Spokane)

Washington DC


We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.



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