Planning for Transplant Costs from the National Marrow Donor Program
The list below has sites that have been published on reputable sites. However - there are some that are completely free so it is suggested you go with them before one that asks you to pay a fee.
www.pparx.org is the main site for all the pharmaceutical companies under one umbrella - it is reputable, comprehensive and free.
PATIENT ASSISTANCE PROGRAMS
Programs/Charities for accessing medicines, reimbursement support, or co-pay assistance
Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
https://www.patientadvocate.org/explore-our-resources/national-financial-resource-directory/
Telephone: 800-532-5274
Hours: Monday-Thursday 8:30 – 5pm; Friday 8:30-4pm EST
Email: help@patientadvocate.org
Patient Access Network (PAN) Foundation
PO Box 30500
Bethesda, MD 20824
https://panfoundation.org/index.php/en/patients/assistance-programs/amyloidosis
Telephone: 866-316-7263
Email: info@panfoundation.org
The Assistance Fund
4700 Millenia Blvd., Suite 410
Orlando, FL 32839
https://tafcares.org/patients/
Telephone: 855-512-2801
Hours: Monday-Friday 9am - 6pm EST, excluding holidays
Online Chat Available
Partnership for Prescription Assistance (PPARx)
PPARx is an organization that helps patients who don’t have a prescription drug plan and cannot afford their medicine
1-800-447-2669
www.pparx.org
My Medicare Matters
1-800-633-4227
www.mymedicarematters.org
Good Days
1-877-968-7233
www.gooddaysfromcdf.org
Patient Advocate Foundation C0-Pay Relief
1-866-512-3861
www.copays.org
RX Assist
10401-729-3284
www.rxassist.org
www.freemedicineprogram.org
PATIENT ADVOCACY ORGANIZATIONS
Aplastic Anemia and MDS International
Foundation Inc. (AAMDS)
1-800-747-2820
www.aamds.org
American Cancer Society
1-800-227-2345
www.cancer.org
Multiple Myeloma Research Foundation
(MMRF)
http://www.themmrf.org/
Myelodysplastic Syndromes Foundation
1-800-637-0839
www.mds-foundation.org
For Medicine through Clinical Trials
www.clinicaltrials.gov
FINDING INFORMATION ABOUT A DISEASE OR CONDITION
National Institutes of Health (NIH)
http://www.nih.gov/icd/
MEDLINEplus (a service of the National Library of Medicine and the NIH)
http://www.medlineplus.gov
Genetics Home Reference (a service of the National Library of Medicine)
http://ghr.nlm.nih.gov
Gene Tests
http://www.genetests.org
Clinical Research Studies Protocol Database at NIH
http://clinicalstudies.info.nih.gov
General Information about clinical studies (Warren grant Magnuson Clinical Center at NIH)
http://www.cc.nih.gov/participate.shtml
LOCATING SUPPORT ORGANIZATIONS:
You may also contact the Genetic and Rare Diseases (GARD) Information Center, a service launched by the National Human Genome Research Institute and the Office of Rare Diseases at the NIH to provide free and immediate access to accurate, reliable information about genetic and rare diseases. Experienced information specialists are available to answer questions by telephone and TTY, email, fax and letter. Telephone and TTY calls are answered Monday through Friday from noon to 6:00 p.m. eastern time.
Toll Free: 888-205-2311
TTY: 888-205-3223
Fax: 240-632-9154
Email GARDinfo@nih.gov
Mail: P.O. Box 8126 Gaithersburg, MD 20898-8126
Cancer Hope Network
877-467-3638
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