• The Leukemia & Lymphoma Society has also started co-pay assistance

The list below has sites that have been published on reputable sites. However - there are some that are completely free so it is suggested you go with them before one that asks you to pay a fee. www.pparx.org is the main site for all the pharmaceutical companies under one umbrella - it is reputable, comprehensive and free.

PATIENT ASSISTANCE PROGRAMS

Programs/Charities for accessing medicines, reimbursement support, or co-pay assistance

Patient Advocate Foundation
421 Butler Farm Road
Hampton, VA 23666
https://www.patientadvocate.org/explore-our-resources/national-financial-resource-directory/
Telephone: 800-532-5274
Hours: Monday-Thursday 8:30 – 5pm; Friday 8:30-4pm EST
Email: help@patientadvocate.org

Patient Access Network (PAN) Foundation
PO Box 30500
Bethesda, MD 20824
https://panfoundation.org/index.php/en/patients/assistance-programs/amyloidosis
Telephone: 866-316-7263
Email: info@panfoundation.org

The Assistance Fund
4700 Millenia Blvd., Suite 410
Orlando, FL 32839
https://tafcares.org/patients/
Telephone: 855-512-2801
Hours: Monday-Friday 9am - 6pm EST, excluding holidays
Online Chat Available

Partnership for Prescription Assistance (PPARx)
PPARx is an organization that helps patients who don’t have a prescription drug plan and cannot afford their medicine
1-800-447-2669
www.pparx.org

My Medicare Matters
1-800-633-4227
www.mymedicarematters.org

Good Days
1-877-968-7233
www.mygooddays.org

Patient Advocate Foundation C0-Pay Relief
1-866-512-3861
www.copays.org

RX Assist
10401-729-3284
www.rxassist.org

www.freemedicineprogram.org

PATIENT ADVOCACY ORGANIZATIONS

Aplastic Anemia and MDS International
Foundation Inc. (AAMDS)
1-800-747-2820
www.aamds.org

American Cancer Society
1-800-227-2345
www.cancer.org

Multiple Myeloma Research Foundation
(MMRF)
http://www.themmrf.org/

Myelodysplastic Syndromes Foundation
1-800-637-0839
www.mds-foundation.org

For Medicine through Clinical Trials
www.clinicaltrials.gov

FINDING INFORMATION ABOUT A DISEASE OR CONDITION

National Institutes of Health (NIH)
http://www.nih.gov/icd/

MEDLINEplus (a service of the National Library of Medicine and the NIH)
http://www.medlineplus.gov

Genetics Home Reference (a service of the National Library of Medicine)
http://ghr.nlm.nih.gov

Gene Tests
http://www.genetests.org

Clinical Research Studies Protocol Database at NIH
http://clinicalstudies.info.nih.gov

General Information about clinical studies (Warren grant Magnuson Clinical Center at NIH)
http://www.cc.nih.gov/participate.shtml

LOCATING SUPPORT ORGANIZATIONS:

You may also contact the Genetic and Rare Diseases (GARD) Information Center, a service launched by the National Human Genome Research Institute and the Office of Rare Diseases at the NIH to provide free and immediate access to accurate, reliable information about genetic and rare diseases. Experienced information specialists are available to answer questions by telephone and TTY, email, fax and letter. Telephone and TTY calls are answered Monday through Friday from noon to 6:00 p.m. eastern time.

Toll Free: 888-205-2311
TTY: 888-205-3223
Fax: 240-632-9154
Email GARDinfo@nih.gov
Mail: P.O. Box 8126 Gaithersburg, MD 20898-8126

Cancer Hope Network
877-467-3638
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