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Were you diagnosed with Cerebral Amyloid Angiopathy (CAA)?
Amyloidosis Support Groups
Amyloidosis Support Groups Virtual Meetings
Amyloidosis Support Groups is hosting “virtual” support group meetings during the coronavirus pandemic through a series of webinars. Although we cannot meet in person until it is safe, we are maintaining our support group meetings through these online webinars that all patients and caregivers can attend. You can register for upcoming webinars as well as view the excellent presentations from our previous webinars through the links on this page.
DATE: June 13, 2020 1:00 PM - 4:30 PM ET
TOPIC: AL Light Chain Amyloidosis
DETAILS: To register for this webinar, click here.
Some of our past, present and future presenters and panelists are:
AL Light Chain Amyloidosis Support Group Meeting, April 18, 2020, 11am-3pm EST
Light Chain (AL) Amyloidosis: Treatment in 2020 and Beyond Heather Landau, MD, Memorial Sloan Kettering Cancer Center
Cardiac Amyloidosis: A Patient’s Perspective Rick Ruberg, MD, Amyloidosis Center, Boston University School of Medicine
CAEL-101 Update Michael Spector, President, Caelum Biosciences
Imaging Systemic Amyloidosis (AL) Johnathan Wall, MD, University of Tennessee Graduate School of Medicine
Advocacy Update Financial Support (Paula Schmitt, ASG), Registry (Bob Gibson, ASG), Amyloidosis Research Consortium (Isabelle Lousada, ARC), Speakers Bureau (Mackenzie Boedicker, Mackenzie’s Mission)
Questions and Answers Panelists
ATTR Amyloidosis Support Group Meeting, April 25, 2020, 11am-3pm EST
ATTR Cardiac Amyloidosis David Wolinsky, MD, Director Cardiac Amyloid Clinic, Cleveland Clinic, Florida
Peripheral and Autonomic Neuropathy Chafic Karam, MD, Professor of Neurology, Oregon Health & Science University
Renal Amyloidosis Andrea Havasi, MD, Amyloidosis Center, Boston University School of Medicine
Imaging Systemic Amyloidosis (ATTR) Johnathan Wall, MD, University of Tennessee Graduate School of Medicine
Questions and Answers, Panelists
Complete ATTR Webinar including All Presentations Amyloidosis Support Groups
WEBINARS (Virtual Meetings)
California (Los Angeles)
California (San Diego)
New York City
New York (Rochester)
We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.