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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


Amyloidosis Support Groups Virtual Meetings

Amyloidosis Support Groups is hosting “virtual” support group meetings during the coronavirus pandemic through a series of webinars. Although we cannot meet in person until it is safe, we are maintaining our support group meetings through these online webinars that all patients and caregivers can attend. You can register for upcoming webinars as well as view the excellent presentations from our previous webinars through the links on this page.

Upcoming Webinars

DATE: August 15, 2020- Noon to 4pm EDT
TOPIC: ATTR Amyloidosis (Hereditary and Wild Type)
DETAILS: Register Here!

Some of our past, present and future presenters and panelists are:

  • Jo Abraham
  • Katie Agre
  • Kelsey Barrell
  • Monica Fawzy Bryant
  • John Clarke
  • Chakra Chaulagain
  • Angela Dispenzieri
  • Morie Gertz
  • Martha Grogan
  • Andrea Havasi
  • Michelle Kaku
  • Chafic Karam
  • Tibor Kovacsovics
  • Shaji Kumar
  • Heather Landau
  • Vincent Lau
  • Celestial Miller
  • Jose Nativi
  • Jignesh Patel
  • Maria Picken
  • Cara Rosenbaum
  • Rick Ruberg
  • Vaishali Sanchorawala
  • Dr. Nitasha Sarswat
  • Farooq Sheik
  • Brett Sperry
  • Barry Trachtenberg
  • Jason Valent
  • Robert Vescio
  • Jonathan Wall
  • Ronald M. Witteles
  • David Wolinsky
  • Jeffrey Zonder
  • ----------------------------------

    Previous Webinars

    AL Light Chain Amyloidosis Support Group Meeting, June 13, 2020, 1pm-4:30pm EST

    Presentations

    Speakers

    Angela Dispenzieri, MD, Chair, Division of Hematology, Mayo Clinic, Rochester, MN
    Andrea Havasi, MD, Amyloidosis Center, Boston University School of Medicine
    Jose Nativi-Nicolau, MD, Associate Professor of Medicine, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT

    Panelists

    Jo Abraham, MD, MPH, FASN, Associate Professor, Nephrology & Hypertension, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT
    Chafic Karam, MD, Professor of Neurology, Oregon Health & Science University
    Tibor Kovacsovics, MD, Professor (Clinical), Internal Medicine, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT
    Celestial Miller, MDA,RDN,CSO,CNSC,CD, University of Utah Healthcare, Salt Lake City, UT
    Jignesh K. Patel, MD, PhD, Cedars-Sinai California Heart Center, Beverly Hills, CA
    Maria M. Picken, MD, PhD, Professor, Loyola University Medical Center, Chicago, IL
    Cara Rosenbaum, MD, Assistant Professor of Medicine, Weill Cornell Medical College, Cornell University, New York NY
    David Wolinsky, MD, Director Cardiac Amyloid Clinic, Cleveland Clinic Florida, Weston, FL


    ATTR Amyloidosis Support Group Meeting, April 25, 2020, 11am-3pm EST

    Presentations


    AL Light Chain Amyloidosis Support Group Meeting, April 18, 2020, 11am-3pm EST

    Presentations



    Support Groups

    2020 CALENDAR



    WEBINARS (Virtual Meetings)



    Arizona (Phoenix)

    California (Los Angeles)

    California (San Diego)

    Chicago

    Colorado

    Detroit

    Florida (Jacksonville)

    Florida (Miami)

    Florida (Tampa)

    Georgia/Alabama

    Indianapolis

    Kansas City

    Louisiana

    Maryland (Baltimore/D.C.)

    Maryland (Hagerstown)

    Massachusetts

    Minnesota

    Nevada

    New York City

    New York (Rochester)

    North Carolina

    OSU/Cleveland Clinic

    Philadelphia

    Portland

    St. Louis

    South Carolina

    Texas (Dallas)

    Texas (Houston)

    Utah

    Virginia

    Washington (Seattle)

    Washington (Spokane)

    Washington DC


    We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.



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