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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org

Amyloidosis Support Groups Virtual Meetings

Amyloidosis Support Groups is hosting “virtual” support group meetings during the coronavirus pandemic through a series of webinars. Although we cannot meet in person until it is safe, we are maintaining our support group meetings through these online webinars that all patients and caregivers can attend. You can register for upcoming webinars as well as view the excellent presentations from our previous webinars through the links on this page.

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Upcoming Webinars

DATE: June 13, 2020 1:00 PM - 4:30 PM ET
TOPIC: AL Light Chain Amyloidosis
DETAILS: To register for this webinar, click here.

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Some of our past, present and future presenters and panelists are:

Jo Abraham

Chafic Karam

Shaji Kumar

Vaishali Sanchorawala

Jeffrey Zonder

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Previous Webinars

AL Light Chain Amyloidosis Support Group Meeting, April 18, 2020, 11am-3pm EST

Presentations

Light Chain (AL) Amyloidosis: Treatment in 2020 and Beyond Heather Landau, MD, Memorial Sloan Kettering Cancer Center

Cardiac Amyloidosis: A Patient’s Perspective Rick Ruberg, MD, Amyloidosis Center, Boston University School of Medicine

CAEL-101 Update Michael Spector, President, Caelum Biosciences

Imaging Systemic Amyloidosis (AL) Johnathan Wall, MD, University of Tennessee Graduate School of Medicine

Advocacy Update Financial Support (Paula Schmitt, ASG), Registry (Bob Gibson, ASG), Amyloidosis Research Consortium (Isabelle Lousada, ARC), Speakers Bureau (Mackenzie Boedicker, Mackenzie’s Mission)

Questions and Answers Panelists

ATTR Amyloidosis Support Group Meeting, April 25, 2020, 11am-3pm EST

Presentations

ATTR Cardiac Amyloidosis David Wolinsky, MD, Director Cardiac Amyloid Clinic, Cleveland Clinic, Florida

Peripheral and Autonomic Neuropathy Chafic Karam, MD, Professor of Neurology, Oregon Health & Science University

Renal Amyloidosis Andrea Havasi, MD, Amyloidosis Center, Boston University School of Medicine

Imaging Systemic Amyloidosis (ATTR) Johnathan Wall, MD, University of Tennessee Graduate School of Medicine

Questions and Answers, Panelists

Complete ATTR Webinar including All Presentations Amyloidosis Support Groups

2020 CALENDAR

WEBINARS (Virtual Meetings)

Arizona (Phoenix)

California (Los Angeles)

California (San Diego)

Chicago

Colorado

Detroit

Florida (Jacksonville)

Florida (Miami)

Florida (Tampa)

Georgia/Alabama

Indianapolis

Kansas City

Louisiana

Maryland (Baltimore/D.C.)

Maryland (Hagerstown)

Massachusetts

Minnesota

Nevada

New York City

New York (Rochester)

North Carolina

OSU/Cleveland Clinic

Philadelphia

Portland

St. Louis

South Carolina

Texas (Dallas)

Texas (Houston)

Utah

Virginia

Washington (Seattle)

Washington (Spokane)

Washington DC

We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.

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