Amyloidosis Support Groups Virtual Meetings

Upcoming Webinars DATE: September 26th, 2020 TOPIC: AL Amyloidosis DETAILS: If you plan to attend this meeting, please REGISTER HERE.

Some of our past, present and future presenters and panelists are:

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Previous Webinars

hATTR and ATTRwt Amyloidosis Support Group Meeting, August 15, 2020

• Introduction, Memorial Tribute and Participant Bios - Muriel Finkel, President, ASG and Tracey Deutsch, International Liaison, ASG
• Amyloidosis and the Heart - Martha Grogan, MD
• Neurological Complications of ATTR Amyloidosis - Chafic Karam, MD
• Amyloidosis and the Gut - John Clarke, MD
• Health Insurance - Monica Bryant, Esq
• Genetic Counseling for TTR Amyloidosis - Katie Agre, MS, LCGC
• ASG Updates: Financial Assistance, oneAMYLOIDOSISvoice, Patient Registry- Paula Schmitt, ASG Executive Director and Bob Gibson, ASG Special Projects Director
• Q&A Session - Speakers and Panelists

Speakers

Martha Grogan, MD, Director, Cardiac Amyloid Clinic, Mayo Clinic, Rochester, MN
Chafic Karam, MD, Professor of Neurology, Oregon Health & Science University
John Clarke, MD, Director, Esophageal Program, Clinical Associate Professor of Medicine, Stanford University
Monica Bryant, Esq., Health Care Rights Attorney, Triage Cancer
Katie Agre, MS, Licensed Certified Genetic Counselor, Department of Cardiovascular Diseases, Mayo Clinic, Rochester, MN

Panelists

Kevin Alexander, MD, Assistant Professor of Medicine, The Stanford University Medical Center
Celestial Miller, MDA,RDN,CSO,CNSC,CD, University of Utah Healthcare, Salt Lake City, UT
Jignesh K. Patel, MD, PhD, Cedars-Sinai California Heart Center, Beverly Hills, CA
Maria M. Picken, MD, PhD, Professor, Loyola University Medical Center, Chicago, IL
Nitasha Sarswat, MD, Director of Infiltrative Cardiomyopathy Program, University of Chicago
Ron Witteles, MD, Co-Director, Stanford Amyloid Center, The Stanford University Medical Center

AL Light Chain Amyloidosis Support Group Meeting, June 13, 2020

• Introduction to AL Webinar June 13, 2020, Muriel Finkel, President, Amyloidosis Support Groups
• The Treatment of AL Amyloidosis, Angela Dispenzieri, MD, Chair, Division of Hematology, Mayo Clinic, Rochester, MN
• Light Chain Amyloidosis in the Heart, Jose Nativi-Nicolau, MD, Associate Professor of Medicine, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT
• Renal Amyloidosis, Andrea Havasi, MD, Amyloidosis Center, Boston University School of Medicine
• Financial Assistance and Amyloidosis Patient Registry Update, Paula Schmitt and Bob Gibson, Amyloidosis Support Groups
• Question and Answer Session, Panelists
• Written Answers to Additional Questions from Patients (PDF), Panelists

Speakers

Angela Dispenzieri, MD, Chair, Division of Hematology, Mayo Clinic, Rochester, MN
Andrea Havasi, MD, Amyloidosis Center, Boston University School of Medicine
Jose Nativi-Nicolau, MD, Associate Professor of Medicine, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT

Panelists

Jo Abraham, MD, MPH, FASN, Associate Professor, Nephrology & Hypertension, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT
Chafic Karam, MD, Professor of Neurology, Oregon Health & Science University
Tibor Kovacsovics, MD, Professor (Clinical), Internal Medicine, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT
Celestial Miller, MDA,RDN,CSO,CNSC,CD, University of Utah Healthcare, Salt Lake City, UT
Jignesh K. Patel, MD, PhD, Cedars-Sinai California Heart Center, Beverly Hills, CA
Maria M. Picken, MD, PhD, Professor, Loyola University Medical Center, Chicago, IL
Cara Rosenbaum, MD, Assistant Professor of Medicine, Weill Cornell Medical College, Cornell University, New York NY
David Wolinsky, MD, Director Cardiac Amyloid Clinic, Cleveland Clinic Florida, Weston, FL

ATTR Amyloidosis Support Group Meeting, April 25, 2020

• ATTR Cardiac Amyloidosis David Wolinsky, MD, Director Cardiac Amyloid Clinic, Cleveland Clinic, Florida
  
• Peripheral and Autonomic Neuropathy Chafic Karam, MD, Professor of Neurology, Oregon Health & Science University
  
• Renal Amyloidosis Andrea Havasi, MD, Amyloidosis Center, Boston University School of Medicine
  
• Imaging Systemic Amyloidosis (ATTR) Johnathan Wall, MD, University of Tennessee Graduate School of Medicine
  
• Questions and Answers, Panelists
  
• Complete ATTR Webinar including All Presentations Amyloidosis Support Groups

AL Light Chain Amyloidosis Support Group Meeting, April 18, 2020

• Light Chain (AL) Amyloidosis: Treatment in 2020 and Beyond Heather Landau, MD, Memorial Sloan Kettering Cancer Center
  
• Cardiac Amyloidosis: A Patient’s Perspective Rick Ruberg, MD, Amyloidosis Center, Boston University School of Medicine
  
• CAEL-101 Update Michael Spector, President, Caelum Biosciences
  
• Imaging Systemic Amyloidosis (AL) Johnathan Wall, MD, University of Tennessee Graduate School of Medicine
  
• Advocacy Update Financial Support (Paula Schmitt, ASG), Registry (Bob Gibson, ASG), Amyloidosis Research Consortium (Isabelle Lousada, ARC), Speakers Bureau (Mackenzie Boedicker, Mackenzie’s Mission)
  
• Questions and Answers Panelists