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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


Amyloidosis Support Groups Virtual Meetings

Amyloidosis Support Groups is hosting “virtual” support group meetings during the coronavirus pandemic through a series of webinars. Although we cannot meet in person until it is safe, we are maintaining our support group meetings through these online webinars that all patients and caregivers can attend. You can register for upcoming webinars as well as view the excellent presentations from our previous webinars through the links on this page.

Upcoming Webinars

DATE:December 5th 2020
TOPIC:ATTR – How do the treatments work?
DETAILS:REGISTRATION LINK COMING SOON

Some of our past, present and future presenters and panelists are:

  • Jo Abraham
  • Katie Agre
  • Kevin Michael Alexander
  • Kelsey Barrell
  • Monica Fawzy Bryant
  • John Clarke
  • Chakra Chaulagain
  • Angela Dispenzieri
  • Morie Gertz
  • Martha Grogan
  • Andrea Havasi
  • Michelle Kaku
  • Chafic Karam
  • Tibor Kovacsovics
  • Shaji Kumar
  • Heather Landau
  • Vincent Lau
  • Suzanne Lentzsch
  • Mat Maurer
  • Celestial Miller
  • Jose Nativi
  • Jignesh Patel
  • Maria Picken
  • Cara Rosenbaum
  • Rick Ruberg
  • Vaishali Sanchorawala
  • Farooq Sheik
  • Brett Sperry
  • Barry Trachtenberg
  • Jason Valent
  • Robert Vescio
  • Jonathan Wall
  • Ronald M. Witteles
  • David Wolinsky
  • Jeffrey Zonder
  • ----------------------------------

    Previous Webinars

    AL Amyloidosis Support Group Virtual Meeting, September 26, 2020

    Presentations

    Panelists

    Chafic Karam, MD, Associate Professor of Neurology, University of Pennsylvania
    Suzanne Lentzsch, MD, PhD, Director, Multiple Myeloma and Amyloidosis Program and Professor of Clinical Medicine, Columbia University Medical Center
    Maria M. Picken, MD, PhD, Professor, Loyola University Medical Center, Chicago, IL
    Robert Vescio, MD, Director, Multiple Myeloma and Amyloidosis Program, Cedars-Sinai Medical Center
    Ron Witteles, MD, Co-Director, Stanford Amyloid Center, The Stanford University Medical Center
    Jeffrey Zonder, MD, Professor of Medicine, Departments of Hematology and Oncology, Wayne State University


    hATTR and ATTRwt Amyloidosis Support Group Meeting, August 15, 2020

    Presentations

    Speakers

    Martha Grogan, MD, Director, Cardiac Amyloid Clinic, Mayo Clinic, Rochester, MN
    Chafic Karam, MD, Professor of Neurology, Oregon Health & Science University
    John Clarke, MD, Director, Esophageal Program, Clinical Associate Professor of Medicine, Stanford University
    Monica Bryant, Esq., Health Care Rights Attorney, Triage Cancer
    Katie Agre, MS, Licensed Certified Genetic Counselor, Department of Cardiovascular Diseases, Mayo Clinic, Rochester, MN

    Panelists

    Kevin Alexander, MD, Assistant Professor of Medicine, The Stanford University Medical Center
    Celestial Miller, MDA,RDN,CSO,CNSC,CD, University of Utah Healthcare, Salt Lake City, UT
    Jignesh K. Patel, MD, PhD, Cedars-Sinai California Heart Center, Beverly Hills, CA
    Maria M. Picken, MD, PhD, Professor, Loyola University Medical Center, Chicago, IL
    Nitasha Sarswat, MD, Director of Infiltrative Cardiomyopathy Program, University of Chicago
    Ron Witteles, MD, Co-Director, Stanford Amyloid Center, The Stanford University Medical Center


    AL Light Chain Amyloidosis Support Group Meeting, June 13, 2020

    Presentations

    Speakers

    Angela Dispenzieri, MD, Chair, Division of Hematology, Mayo Clinic, Rochester, MN
    Andrea Havasi, MD, Amyloidosis Center, Boston University School of Medicine
    Jose Nativi-Nicolau, MD, Associate Professor of Medicine, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT

    Panelists

    Jo Abraham, MD, MPH, FASN, Associate Professor, Nephrology & Hypertension, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT
    Chafic Karam, MD, Professor of Neurology, Oregon Health & Science University
    Tibor Kovacsovics, MD, Professor (Clinical), Internal Medicine, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT
    Celestial Miller, MDA,RDN,CSO,CNSC,CD, University of Utah Healthcare, Salt Lake City, UT
    Jignesh K. Patel, MD, PhD, Cedars-Sinai California Heart Center, Beverly Hills, CA
    Maria M. Picken, MD, PhD, Professor, Loyola University Medical Center, Chicago, IL
    Cara Rosenbaum, MD, Assistant Professor of Medicine, Weill Cornell Medical College, Cornell University, New York NY
    David Wolinsky, MD, Director Cardiac Amyloid Clinic, Cleveland Clinic Florida, Weston, FL


    ATTR Amyloidosis Support Group Meeting, April 25, 2020

    Presentations


    AL Light Chain Amyloidosis Support Group Meeting, April 18, 2020

    Presentations



    Support Groups

    2020 CALENDAR



    WEBINARS (Virtual Meetings)



    Arizona (Phoenix)

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    Georgia/Alabama

    Indianapolis

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    OSU/Cleveland Clinic

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    Texas (Houston)

    Utah

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    Washington (Seattle)

    Washington (Spokane)

    Washington DC


    We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.



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