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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


Amyloidosis Support Groups Virtual Meetings

Amyloidosis Support Groups is hosting “virtual” support group meetings during the coronavirus pandemic through a series of webinars. Although we cannot meet in person until it is safe, we are maintaining our support group meetings through these online webinars that all patients and caregivers can attend. You can register for upcoming webinars as well as view the excellent presentations from our previous webinars through the links on this page.

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Upcoming Webinars

DATE: June 13, 2020 1:00 PM - 4:30 PM ET
TOPIC: AL Light Chain Amyloidosis
DETAILS: To register for this webinar, click here.

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Some of our past, present and future presenters and panelists are:

  • Jo Abraham
  • Chakra Chaulagain
  • Angela Dispenzieri
  • Morie Gertz
  • Martha Grogan
  • Andrea Havasi
  • Michelle Kaku
  • Chafic Karam
  • Tibor Kovacsovics
  • Shaji Kumar
  • Heather Landau
  • Jose Nativi
  • Maria Picken
  • Cara Rosenbaum
  • Rick Ruberg
  • Vaishali Sanchorawala
  • Farooq Sheik
  • Brett Sperry
  • Barry Trachtenberg
  • Jason Valent
  • Robert Vescio
  • Jonathan Wall
  • David Wolinsky
  • Jeffrey Zonder
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    Previous Webinars

    AL Light Chain Amyloidosis Support Group Meeting, April 18, 2020, 11am-3pm EST

    Presentations
  • Light Chain (AL) Amyloidosis: Treatment in 2020 and Beyond Heather Landau, MD, Memorial Sloan Kettering Cancer Center
  • Cardiac Amyloidosis: A Patient’s Perspective Rick Ruberg, MD, Amyloidosis Center, Boston University School of Medicine
  • CAEL-101 Update Michael Spector, President, Caelum Biosciences
  • Imaging Systemic Amyloidosis (AL) Johnathan Wall, MD, University of Tennessee Graduate School of Medicine
  • Advocacy Update Financial Support (Paula Schmitt, ASG), Registry (Bob Gibson, ASG), Amyloidosis Research Consortium (Isabelle Lousada, ARC), Speakers Bureau (Mackenzie Boedicker, Mackenzie’s Mission)
  • Questions and Answers Panelists

    ATTR Amyloidosis Support Group Meeting, April 25, 2020, 11am-3pm EST

    Presentations
  • ATTR Cardiac Amyloidosis David Wolinsky, MD, Director Cardiac Amyloid Clinic, Cleveland Clinic, Florida
  • Peripheral and Autonomic Neuropathy Chafic Karam, MD, Professor of Neurology, Oregon Health & Science University
  • Renal Amyloidosis Andrea Havasi, MD, Amyloidosis Center, Boston University School of Medicine
  • Imaging Systemic Amyloidosis (ATTR) Johnathan Wall, MD, University of Tennessee Graduate School of Medicine
  • Questions and Answers, Panelists
  • Complete ATTR Webinar including All Presentations Amyloidosis Support Groups


  • Support Groups

    2020 CALENDAR



    WEBINARS (Virtual Meetings)



    Arizona (Phoenix)

    California (Los Angeles)

    California (San Diego)

    Chicago

    Colorado

    Detroit

    Florida (Jacksonville)

    Florida (Miami)

    Florida (Tampa)

    Georgia/Alabama

    Indianapolis

    Kansas City

    Louisiana

    Maryland (Baltimore/D.C.)

    Maryland (Hagerstown)

    Massachusetts

    Minnesota

    Nevada

    New York City

    New York (Rochester)

    North Carolina

    OSU/Cleveland Clinic

    Philadelphia

    Portland

    St. Louis

    South Carolina

    Texas (Dallas)

    Texas (Houston)

    Utah

    Virginia

    Washington (Seattle)

    Washington (Spokane)

    Washington DC


    We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.



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