Progress Report on Amyloidosis Patient Registry Upgrade
The ASG is continuing to move forward on the upgrade of the Amyloidosis Patient Registry platform. During this process, we are unable to accept new registrations. While this move has taken longer than anticipated, we believe that the new platform will be far superior to its predecessor and well worth the wait. The updated registry will feature a brand new look that is easier to navigate, has enhanced security protocols, and gives you the ability to connect all of your electronic health portals in one, easy to access location.
Once the transition is completed, we will notify current registrants via email, in addition to posting an announcement here. Please check back in late September for additional details on the upgrade. We thank you for your continued patience and interest in the Amyloidosis Patient Registry as we make these important improvements.
Amyloidosis Support Groups
We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.