Amyloidosis Patient Registry Notice: Temporary Suspension of New Registrations
ASG is temporarily suspending new registrations in order to prepare for an upgrade of the Amyloidosis Patient Registry system platform. The updated registry will feature a brand new look that is easier to navigate, has enhanced security protocols, and gives you the ability to connect all of your electronic health portals in one, easy to access location.
If you have already registered, you will continue to have access to the Registry until the upgrade begins. We will notify current registrants by email, in addition to posting the notice here, when we finalize the dates and duration of the actual upgrade.
Please check back in mid-October for additional details on the upgrade status. Thank you for your patience as we make these important improvements.
We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.