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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org

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    While our face to face meetings are currently on hold, please join us at one or more of our virtual meetings.
    Visit our new WEBINARS page for more details.

    Support Groups


    Heard at a recent ASG meeting:

    ….. Thanks so much for organizing such a great support event Muriel. It was my first meeting and it was great. Very informative, but what was most helpful was meeting and listening to others with this disease.....listening to their treatment plan, etcetera. Thank you so much!

    …… My brother and I had to leave today's meeting early. I agree that today's meeting was very informative. I wasn't able to get all the information because the pace was fast due to time constraints, but my questions were answered fully. Thank you for your energy and efforts into making these meetings so productive.

    “I knew I had problems when my wife and I realized I could get to second base”

    ……So when I told the doctor I had bubbles and foam in my urine, he said, “Don’t pee so forcefully”!

    ……Mom said I should keep my new stem cells warm, and not go barefoot, and wear socks…….

    …….”He said you have hemorrhoids?”…….I said, “No, amyloids”……..

    ……. Will my stored stem cells get freezer burn?


    ………Thanks again for the session on Saturday. It was one of the best. On occasion I ask myself, do you really want to attend? Isn't this just going to be old information you've heard before? And the answer, of course, is that each session brings better understanding and insight. Brenda and I both thank you for this…………..

    …………Once again, it was an outstanding meeting with excellent medical updates, Q&A, informal sharing...

    …………………..The meeting today was so informative. One of the best that I've attended…………………

    ………………..Thanks for the great meeting. It was a gratifying and enlightening day. the doctors were all wonderful. Your email stating your praises for all of them was right on. ……………..

    …..Just wanted to thank Paula for the great job she did in putting together the Atlanta Support Group Mtg. My parents and I were very impressed and pleased with the exchange of information among the attendees. Listening to each others stories and discussing various topics such as clinical trials proved to be very insightful and informative. We look forward to and are excited about attending the next Atlanta meeting! …..

  • Support Groups

    2020 CALENDAR

    WEBINARS (Virtual Meetings)

    Arizona (Phoenix)

    California (Los Angeles)

    California (San Diego)




    Florida (Jacksonville)

    Florida (Miami)

    Florida (Tampa)



    Kansas City


    Maryland (Baltimore/D.C.)

    Maryland (Hagerstown)




    New York City

    New York (Rochester)

    North Carolina

    OSU/Cleveland Clinic



    St. Louis

    South Carolina

    Texas (Dallas)

    Texas (Houston)



    Washington (Seattle)

    Washington (Spokane)

    Washington DC

    We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.

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