  "Some day this disease will be considered a treatable nuisance" -- Dr. Vescio from Cedars Sinai |
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**TTR & Familial**
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International Amyloidosis Centers
• Center for the Study of Familial Amyloidosis
(Rio de Janeiro, Brazil) –
• Center for the Study & Cure of Systemic Amyloidosis
(Pavia, Italy) –
• Germany
(Heidelberg) –
• Groningen Unit for Amyloidosis Research & Development
(The Netherlands) –
•
National Centre for Amyloidosis
(London, U.K.) –
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Princess Alexandra Hospital
(Brisbane, Australia) –
•
Spain
(Barcelona) –
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Westmead Hospital
(Sydney, Australia) –
• Kumamoto University Hospital
(Kumamoto, Japan) –
• Princess Margaret Cancer Centre
(Toronto, Canada) –
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Clinical Trial
Eastern Cooperative Oncology Group:
E2A01 Trial for Patients With Amyloidosis
Click here for a list of institutions participating in this trial This trial is looking at whether Amifostine can help make transplants safer for patients with amyloidosis. If you are placed in the study you will undergo a procedure called stem cell mobilization where cells will be collected from your bloodstream to use in the subsequent transplant. You will then receive amifostine for two days followed by melphalan and one day later your stem cells will be returned. Patients on this study will be followed for up to ten years to assess the long-term effects of the study treatments. Amyloidosis Support Groups AmyloidosisSupport.org 1-866-404-7539 TOLL FREE USA 
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